Your child becoming sick is every parent's worst nightmare. Sadly for Shaney and Joe, the parents of Marley Nichols, that nightmare is their reality.
Marley is seven years old and suffers from aplastic anaemia - a rare disease in which the bone marrow and the hematopoietic stem cells that reside there are damaged. The condition occurs when the body stops producing enough new blood cells, leaving the sufferer with a higher risk of infections and uncontrolled bleeding. Marley desperately needs a bone marrow transplant to save his life, however there is no one on the world register that is a match.
Desperate to save their son, Joe and Shaney launched the Marrow for Marley appeal urging people to join the bone marrow register in the hope that someone will be a match for their son. So far more than 40,000 people have signed up to become potential donors, including 94 of our own employees who signed up at a registration drive we held at our offices last year.
Marley is currently taking part in a ground breaking medical trial at Great Ormond Street Hospital in London, which involves giving him immunosuppressant therapy, coupled with a pioneering new drug. His family said this could boost his chance of going into remission by 80-90%.
However, Shaney has had to leave work to care for Marley and the added trips to London puts additional financial pressure on the family. Caring for your sick child, whilst remaining strong for your family, is hard enough. Yet, at a time where Shaney and Joe should be solely focused on Marley’s recovery, they also have to consider how they will continue to pay their bills, and find the additional funds needed to cover the travel to and from London.
In a bid to try and help ease the financial strain on Marley’s parents, we have donated £1,500 which was raised from dress down collections during the first quarter of the year.
Marley’s mum Shaney, expressed her appreciation to the staff for the money raised:
“We would like to say a big thank you to everyone who donated to the Marrow for Marley appeal. You really have no idea how much this money will help us as a family!
I have had to leave work as Marley needs full time care. Marley is also on a clinical trial at Great Ormond Street Hospital, and this puts a lot of additional financial strain on us as a family.
The money donated will take some pressure off us for a while, and will help with travel costs and accommodation whilst we stay in London with Marley. Thank you for all your kindness and support.”
We are all praying for Marley’s recovery. His story has touched all of our hearts, and it has been an honour to be able to help the family in what little way we can. To find out more about the Marrow for Marley appeal, and for more information on how you can join the bone marrow register, visit the Marrow for Marley Facebook page here.